{"id":11505,"date":"2023-11-02T15:17:00","date_gmt":"2023-11-02T14:17:00","guid":{"rendered":"https:\/\/hl-dizajn.hr\/?p=11505"},"modified":"2024-12-06T14:26:46","modified_gmt":"2024-12-06T13:26:46","slug":"the-sma-exchange-forum","status":"publish","type":"post","link":"https:\/\/hl-dizajn.hr\/en\/the-sma-exchange-forum\/","title":{"rendered":"The SMA Exchange forum"},"content":{"rendered":"<p><strong>Pozivamo vas na\u00a0The SMA Exchange Forum\u00a0pod nazivom\u00a0<em>\u201eZa Sna\u017enije Mi\u0161i\u0107e \u017eivimo Aktivno &#8211; SMA\u201c\u00a0<\/em>u organizaciji Saveza dru\u0161tava distrofi\u010dara Hrvatske, Referentnog centra Ministarstva zdravstva RH za neuromuskularne bolesti i klini\u010dku elektromioneurografiju te tvrtke Roche.<\/strong><\/p>\n\n\n\n<p><strong>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;\u201eThe SMA Exchange Forum\u201c<\/strong><\/p>\n\n\n\n<p>\u0107e se odr\u017eati&nbsp; u obliku online sastanka u&nbsp;<strong>\u010detvrtak,&nbsp;16. studenog 2023<\/strong>., s po\u010detkom u&nbsp;<strong>15.30&nbsp;<\/strong>sati.<br>Ovo \u0107e ujedno biti i prilika da osobe sa SMA postave pitanja, podijele iskustva i&nbsp;daju komentare na teme koje \u0107e predstaviti stru\u010dnjaci tima Referalnog centra.&nbsp;<\/p>\n\n\n\n<p>Poveznica za sudjelovanje je&nbsp;<a href=\"https:\/\/us06web.zoom.us\/j\/88930213246?pwd=eauT7mmpFPrEP7pv2WgBCpDkvOSgBb.1#success\">ovdje<\/a>, dok se s programom rada mo\u017eete upoznati&nbsp;<a href=\"https:\/\/www.sddh.hr\/userfiles\/files\/The_SMA_Echange_forum_Program_rada.pdf\">ovdje<\/a>.<\/p>\n\n\n\n<p><strong>Tagovi:<\/strong>&nbsp;<a href=\"https:\/\/www.sddh.hr\/savez-drustava-distroficara-hrvatske-aktualnosti\/centri-znanja\">centri znanja<\/a>&nbsp;<a href=\"https:\/\/www.sddh.hr\/savez-drustava-distroficara-hrvatske-aktualnosti\/distrofija\">distrofija<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Pozivamo vas na\u00a0The SMA Exchange Forum\u00a0pod nazivom\u00a0\u201eZa Sna\u017enije Mi\u0161i\u0107e \u017eivimo Aktivno &#8211; SMA\u201c\u00a0u organizaciji Saveza dru\u0161tava distrofi\u010dara Hrvatske, Referentnog centra Ministarstva zdravstva RH za neuromuskularne bolesti i klini\u010dku elektromioneurografiju te tvrtke Roche. &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":11506,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"elementor_theme","format":"standard","meta":{"footnotes":""},"categories":[16],"tags":[63,70],"class_list":["post-11505","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sddh-vijesti","tag-centri-znanja","tag-distrofija"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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